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Another Medical Mile Post passed!

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This topic contains 20 replies, has 12 voices, and was last updated by johnbarry 8 months ago.

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  • #31624

    Bob Williams
    Participant
    @bullstuff2

    Update on my cancer treatments: today I went to see my consultant at Grimsby after the latest scan, gave another. I am so chuffed to report that I am still clear of the Nasties. Next scan, blood tests and appointment in 4 months: puts it into July. Consultant is also chuffed, I shook his hand as always and thanked him. Then I went round to Chemo and the BigC ward to thank all the staff there.

    If it’s the Psychic Network why do they need a phone number?

    What’s right is what’s left if you do everything else wrong.

    If women ran the world we wouldn’t have wars, just intense negotiations every 28 days.
    --- Robin Williams

Viewing 20 replies - 1 through 20 (of 20 total)
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  • #31627

    PlaneMan
    Moderator
    @planeman
    Forumite Points: 5,727

    Great news Bob!

    Keep battling away.

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    #31629

    JayCeeDee
    Participant
    @jayceedee
    Forumite Points: 3,780

    That’s brilliant news, Bob. Keep up the good work, just be careful SWMBO hasn’t been saving a few special tasks up for when you were “better”!! ??

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    #31632

    Tippon
    Keymaster
    @tippon
    Forumite Points: 2,663

    Great news Bob 🙂

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    #31635

    Richard
    Participant
    @sawboman
    Forumite Points: 2,303

    Really pleased for you Bob, that is great news, long may the progress continue.

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    #31640

    The VFM Addict
    Participant
    @thevfmaddict
    Forumite Points: 1,849

    It just wouldn’t be the same around here without you, Bob.   So not only is it great news for you, its terrific news for all of us as well.

    _______________________________________________________________________________________

    Here's hoping the Mad Tangerine of the West and the Mad Monk of the East stay friends or we're all in trouble

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    #31644

    The Duke
    Moderator
    @sgb101
    Forumite Points: 4,240

    Congratulations Bob ?

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    #31647

    dwynnehugh
    Participant
    @dwynnehugh
    Forumite Points: 1,530

    Great news for you and your family. Congrats.

    The more you meet people the more you understand why Noah took animals instead of humans

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    #31680

    isdarit
    Participant
    @isdarit
    Forumite Points: 190

    Brilliant news

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    #31701

    Bob Williams
    Participant
    @bullstuff2
    Forumite Points: 5,284

    Thanks guys, as always your words give me heart and cheer me up.

    JCD: you are far too correct! ?☹ SWMBO is waiting for me to shower and dress (had a lazy morning) before (a) fitting the two birthday pressies from lovely gdaughter* and (b) due to collapsed fence, have to go see my mate Andy down the road at his shed/fencing works.

    *Clock/Thermometer/hanging basket and another hanging basket. Time to get out the stepladders. Sun is persisting to shine too. Bugga!

    If it’s the Psychic Network why do they need a phone number?

    What’s right is what’s left if you do everything else wrong.

    If women ran the world we wouldn’t have wars, just intense negotiations every 28 days.
    --- Robin Williams

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    #31704

    Ed P
    Participant
    @edps
    Forumite Points: 7,622

    Great news Bob, but one step at a time!

    It is probably still worth avoiding crowded places. There is some really nasty crap around that nearly kills you but is ‘only’ a cold even though it causes shivering etc, but as it does not give you a fever it does not tick the GP’s flu box.

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    #31712

    Bob Williams
    Participant
    @bullstuff2
    Forumite Points: 5,284

    Thanks Ed.

    Very few crowded places where I live: the only activity in our Close recently was supplied by the clowns who came to fit GCH. They left the hazard fencing up yesterday: it was protecting nothing because they had finished the work. No one pointed out the weather forecast for last night to them, consequently the hazard fencing was spread all over the opposite bungalows’ frontage. Removal van drivers bringing in a new neighbour’s furniture, had to pick it all up before they could get in.

    The clowns came later and removed most of it, but left a few pieces ‘protecting’ a small pile of sand, which they industriously gathered into a pile. Sample conversation between said clowns and myself:

    “Why are you leaving that fencing? It protects nothing but sand.”

    “Well it’s our sand and the fencing keeps it in.”

    “The fencing is open, there are only two horizontal bars. If it’s your fencing you can use that shovel in your truck to load it into the truck. Take it away, the winds are forecast to be stronger tonight than last night and the sand will be all over the Close, how can the fencing possibly retain the sand?”

    “We can’t take it, that’s for another team.”

    You couldn’t make it up….

    If it’s the Psychic Network why do they need a phone number?

    What’s right is what’s left if you do everything else wrong.

    If women ran the world we wouldn’t have wars, just intense negotiations every 28 days.
    --- Robin Williams

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    #31794

    johnbarry
    Participant
    @johnbarry
    Forumite Points: 2,921

    Great stuff Bob, I love it when a plan comes together.

    (sos for nicking your thread)

    Sadly my partner is now on heart tablets, as the Herceptin chemo (this is now stopped) has affeted her heart. Although it seems the cancer has gone and she is discharged from chemo.

    The heart specialist is continuing to monitor her heart.

    Hopefully it should go back to normal eventually, however heart tablets for life.

    It's said to be easy when you know how. If you don't know how, then you need the help of forumites.

    Cheers
    John

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    #31796

    blacklion1725
    Participant
    @blacklion1725
    Forumite Points: 1,878

    Just read this – made up for you Bob – great news – well done and keep going mate!

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    #31812

    Bob Williams
    Participant
    @bullstuff2
    Forumite Points: 5,284

    Thanks BL.

    JB, sorry to hear about your wife’s heart problems but glad she is clear of cancer. “We have good news and bad news.” Hope the Heart tablets keep her well. Along with other daily medication, I am on 2x Erythromycin twice a day to replace the work of my missing spleen, so I know how she must feel. Our meds drawer is chock full!

    Update on the Close GCH workers: they took the sand (after an hour of sweeping it back together) but they piled the fencing into a corner. Yes, that’s for another team to collect. Remember the company name: Gallagher. I would not employ them to fill a hole in the road.

    If it’s the Psychic Network why do they need a phone number?

    What’s right is what’s left if you do everything else wrong.

    If women ran the world we wouldn’t have wars, just intense negotiations every 28 days.
    --- Robin Williams

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    #31817

    Richard
    Participant
    @sawboman
    Forumite Points: 2,303

    It appears to be the current way, everyone is a specialist and only able to do one thing. Our water company works the same way. One lot dig a hole and if you are lucky fit the replacement bit, be it a meter or a new valve or pipe. They then fence off the hole and go away, then the fun starts. Someone comes along to fill the hole, though that alone may take several visits if a mix of fills is needed. Then concrete, tarmac or top soils, then grass seed if needed, then spoil removal, then barrier removal and if it was big enough an inspection, phew.

    Our medical front grinds slowly and is on the cusp of running out of time. My wife was offered genetic screening to take part in a research project back in December and we hot footed it off into London for the samples to be taken the day after boxing day. Last Thursday we were told the samples have been ‘lost’, darned USA, could we come back for a retry? Friday my wife agreed -if the results will be back in the promised two weeks. Then the oncologist rang back to say that though he was part of the research and test team he was not happy with any more delay, as it could prevent any further treatment. So Tuesday should see not only a sample taken in the hope of getting some answers, but also a rather more pointed and focussed debate about just what is going to happen, ASAP.

    Happily the previous drugs have not left too many signs of damage, neuropathy is limited, radiation burns have healed her eyes and heart do not yet appear to have suffered. Unfortunately, the rheumatologist was singing a different story in her report about my wife’s laundry list of underlying autoimmune conditions. Still the latest drug cocktail is helping with her mobility about the house, to which she remains largely self confined.

    I was reading about some interesting research into genetic analysis, genome mapping and threat analysis today. I know it raises profound concerns. However, once you have already stared into the depth of the pit of risks, does it become more or less ethical to know the risk package and how it is structured for your children and subsequent generations? Do they have a right to know?

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    #31820

    Ed P
    Participant
    @edps
    Forumite Points: 7,622

    @Richard tbh I do not know. Having spent time with the US Health Insurance system, if you think there is a finite probability that the lunatic right wing of the Toty Party will force private health insurance on us, then I would be very hesitant to leave my family with more than a sealed envelope and instructions when to open it. Like the UK, US Insurance companies require the divulgence of all related info, and parental genetic testing results can be a sure fire way of raising premiums and adding exclusions.

    [Edit] There can be a positive side to passing on info. The females on my wife’s side of the family share a genetic predisposition to thyroid deficiency in later years. This can be a silent killer so a niece was very grateful of being able to alert her GP and after testing, catch the problem early on.

    I suspect only you can balance the risk/reward equation.

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    #31823

    Richard
    Participant
    @sawboman
    Forumite Points: 2,303

    The insurance risk angle is one issue but one daughter would never be able to afford  insurance anyway with almost no chance of ever working. The other probably would not, both her and her partner work for the NHS. However, setting that slightly to one side if any test revealed a risk factor then insurance would be moot and I rate that risk as high. The real issue would become one of deciding if the risk could be mitigated. Three known generations on my wife’s side have either already died from or suffered from several cancers. Being able to manage the risks going forward for our children and by guiding grandchildren as to the risks that they could face with the wrong partner might be a game changer. A family we know have a now-known and revealed genetic risk, three daughters are OK the fourth is not. The three sisters know their situation and will make their life choices accordingly. In that family case, both the husband and wife were unknown carriers of a genetic element with unfortunate results for their last child.

    Is knowledge power, when it can avoid known risks, even if it means avoiding consideration of unknown possibilities? The issue is multidimensional, if screening shows no heritable risks then that should restore the status quo. ‘Normal’ form filling has a range of questions relating to health anyway and risk enhancers can easily be picked up via such as ‘age of parents at death if not still living‘ and cause of death if known, etc. my level of trust in the insurance industry ranks them below politicians and rabid bats.  My parents held on into their 90s but my wife’s parents went while they were ten years younger than I am now.

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    #31833

    Ed P
    Participant
    @edps
    Forumite Points: 7,622

    Richard I think you raise issues that only a specialist/medical researcher can answer.

    From a theory standpoint all genetic diseases can eventually be eliminated by gene editing CRISPR-Cas9 etc, but the real question is when will this become affordable/available to all?

    I’m veering towards saying show and tell based on my wife’s niece, but this carries very heavy emotional stability risks.

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    #31839

    Richard
    Participant
    @sawboman
    Forumite Points: 2,303

    Richard I think you raise issues that only a specialist/medical researcher can answer. From a theory standpoint all genetic diseases can eventually be eliminated by gene editing CRISPR-Cas9 etc, but the real question is when will this become affordable/available to all? I’m veering towards saying show and tell based on my wife’s niece, but this carries very heavy emotional stability risks.

    I agree, there are horns on all choices and this is no exception. The risk of problems are clear, but was there ever a time when battles were won by walking away? If you still die and learning was lost there can be no win. So I am on the edge forward and yes, show and tell.

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    #31840

    johnbarry
    Participant
    @johnbarry
    Forumite Points: 2,921

    Thanks Bob

     

    It's said to be easy when you know how. If you don't know how, then you need the help of forumites.

    Cheers
    John

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