Arthritis?

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This topic contains 340 replies, has 18 voices, and was last updated by PlaneMan 1 week, 4 days ago.

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  • #2248

    PlaneMan
    Moderator
    @planeman

    Some will remember my topic on MM about my hands (and now hip).

    I saw the consultant today and my hip is mildly wrecked. The cartilage on the ‘socket’ part is worn and has a tear in it. That explains the increased pain I have while walking and moving it anyway apart from straight forward  or back. The consultant was happy to say it was a ‘one of those things’ situation until I showed him my swollen ,bright red fingers.

    I had bloods done and I’m having a MRI on my hands tomorrow. The first one was done when the fingers weren’t inflamed so he’s hoping that something will show this time.

    I’m seeing the physio monday and the consultant a week today, hopefully it’s better news than the referral to a surgeon which was going to happen today but has been delayed while I continue to confuse medical science.  :unsure:

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  • #29823

    Richard
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    @sawboman
    Forumite Points: 1,820

    How very true, in times of real personal troubles there is not ‘them and me’ it becomes just ‘us’. The stress has to be relieved somehow and humour including dark or black* humour is certainly the best way. Those undergoing radio for prostrate troubles joined in as freely as the rest with other forms – and this included the partners. One thing I did notice was that most of those with prostrate cancer were dark skinned, in contrast to those with other cancers who were more equally spread across ethnicities, though many spoke heavily accented English. The take-a-way is that everyone is equal and there can be a cancer or other serious illness for everyone.

    *Denotes the tone of the joking NOT the race or ethnicity.

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    #29826

    Ed P
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    @edps
    Forumite Points: 2,954

    Richard your observation on ethnicity and ailments is very true but something that is whispered rather than given a full airing for fears that it may be racist.Cancer Research has some broad brush stats.

    An Indian doctor friend said it was observed that people from the sub-continent suffer more circulatory diseases than others but the NHS never takes it into account when screening,

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    #29830

    Richard
    Participant
    @sawboman
    Forumite Points: 1,820

    Richard your observation on ethnicity and ailments is very true but something that is whispered rather than given a full airing for fears that it may be racist.Cancer Research has some broad brush stats. An Indian doctor friend said it was observed that people from the sub-continent suffer more circulatory diseases than others but the NHS never takes it into account when screening,

    One of the real elephants in the room is that some medications are not suitable or are largely ineffective for some racial or ethnic groups. This unfortunate fact also applies to others within the otherwise treatable spectrum of patients. Some will respond, some will respond poorly and some will not respond at all, however, as you suggest exploring this issue is a taboo from which the politically incorrect will shout off all comers. Some theories suggest that the difference might be down to hereditary where immunities to some conditions may have evolved at the price of opening up reduced immunity to others. There is also the issue of each person’s biome causing differences in digestion and food processing capabilities with sometimes unwanted effects. I am aware of published data showing that some conditions are over and under represented within some groups.

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    #29864

    PlaneMan
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    @planeman
    Forumite Points: 1,719

    I saw the GP today, appointment booked a little while back.

    Just as well as on Sunday my right shoulder let off an almighty crack that had me lying on the floor in total agony. It does this periodically but nothing like the one on Sunday for over a year. My left shoulder also does it but nowhere near as bad as my right one.

    GP reckons it could well be the arthritis but need to arrange an x-ray. 🙄

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    #29870

    JayCeeDee
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    @jayceedee
    Forumite Points: 1,066

    Don’t let them get away with an x-ray, Nolan. An MRI is what you need and you need to push for it.

    About 8 years ago after hurting her back when my computer chair at the time gave way and jolted her back, she was in agony. The GP referred her for an x-ray. It showed what they described as arthritis on the base of the spine. She knew this was likely so as she had worked on the stall on a street corner for 35 odd years. She put up with the pain for going on 3 years.

    When she asked the GP for a referral to a pain clinic she had heard about, they sent her for an MRI. This showed she had a disc out that had shrivelled over the years and couldn’t be manipulated back into place. It was lying against the sciatic nerve which explained the cramps in her leg, the spasms and the pain. It had been out too long and can now only be dealt with on the table, inserting nylon spacers that absorb the impact between the two vertebrae. She’s determined that that won’t happen until a wheelchair is the only viable option as she hates the thought of being out of action for three months on “take-it-easy rest”.

    Moral of the story is, don’t let them get away with a cheap general picture. Get them to have a good detailed look at it with an MRI.

    Best of luck.

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    #29874

    PlaneMan
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    @planeman
    Forumite Points: 1,719

    Thanks JCD.

    The GP did mention an MRI but also said that it was x-ray first, additional tests on my next bloods (2 weeks to go) and him contacting my rheumatologist for any insight he may have.

    Down here it’s all ‘this step first, then that one’ no jumping to the sensible options.

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    #29959

    Ed P
    Participant
    @edps
    Forumite Points: 2,954

    One for you PM – Fevers make you feel happy!

    Not sure I can believe it, as  it implies that autistic people should gorge on cat food! (cats die if they have a low taurine diet)

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    #29960

    PlaneMan
    Moderator
    @planeman
    Forumite Points: 1,719

    Thanks Ed, you find some cracking stuff!

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    #29962

    Ed P
    Participant
    @edps
    Forumite Points: 2,954

    You are very welcome P.M.

    I have one gs who is borderline on the spectrum (no noticeable symptoms except an unwillingness to make eye contact), so I take an interest in the subject.

    I’m glad to say that of his own volition he has recently taken a liking to broccoli etc., but I think cat-food would be one step too far!

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    #29968

    Bob Williams
    Participant
    @bullstuff2
    Forumite Points: 2,593

    ED wrote:

    I have one gs who is borderline on the spectrum (no noticeable symptoms except an unwillingness to make eye contact), so I take an interest in the subject. ”

    Should your gs develop full-blown Aspergers Ed, and you carry out research as I did, you may notice that the eye contact problem fades with members of his immediate family, and others that he has known well for a long time. I tried to work with it when my (now 25 yo gs) was quite young, by repeatedly instructing him to “Look me in the eye.” It worked and he gradually got better, but still cannot make eye contact with strangers, or people he has not known for very long.

    Other symptoms include a fierce determination to concentrate upon any task that strongly appeals to them. In the case of my gs, that was computing. I created a monster by building his first PC when he was around 9 or 10. He is now a first rate IT tech, specialising in building systems for contracts with his company, whose boss told me in all sincerity that he is his own right hand and he could not work without him. They have ‘tunnel vision’ which makes them work through any task with such concentration. Couple that with the high intelligence that most Aspergers people usually possess and you have any employer’s dream: the worker who does not give up until the job is done.

    He has now suddenly taken an interest in food and is trying out recipes, producing some wonderful meals. He invites family members to his apartment and uses them as guinea pigs! Grandma and granddad have eaten some of his meals and they are good-to- excellent. Another symptom of his Aspergers, by taking up some activity and chasing it down! Now he is developing an interest in Art, probably a result of getting closer to his 13 yo sister, who does not have any Autism but is developing into a polymath, getting A’s and A*’s at her grammar school in all subjects. That gives her a problem, in that she must this year choose the subjects she wishes to carry on with.

    I repeat what I have said in other posts about Autism in general and Aspergers in particular: I suspect it may be evolution in action amongst the last two generations, especially the latest.

    “If you think this Universe is bad, you should see some of the others.”
    ― Philip K. Dick, legendary SF writer.

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    #30171

    PlaneMan
    Moderator
    @planeman
    Forumite Points: 1,719

    I’ve had many appointments over the last few weeks, many more to come.

    One suggestion to help with my autism related anxiety and panic attacks was listening to  music more, instead of just in the car. So I need a decent set of bluetooth earbuds, that aren’t expensive, work with awkward ears and people, in other words, me. Good battery life is a must, USB C charging would fantastic but micro or even mini would be O.K.

    About £20 would be my ideal price, don’t want to spend out more on something that might not help. The ones that came with my Mate 20 Pro are amazing but wired and my crutches always snagg them, no matter how I try and route the cable.

    I believe Duke and BL  have some knowledge in this area.

    T.I.A.

    • This reply was modified 1 month, 3 weeks ago by PlaneMan.

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    #30173

    JayCeeDee
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    @jayceedee
    Forumite Points: 1,066

    I bought THESE after Steve’s praise of them, back in May, last year. They have connected to the iPad and the phone with ease. battery life is good and they have three sets of the ‘in-ear’ rubber insets.

    Sitting in bed with the iPad, watching movies for a couple of hours and they haven’t given me earache or a headache.👍👍

    Micro USB, like the phone, so when I charge the phone overnight, when I get up for the loo, I just swap them over and all is ready for next time.

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    #30182

    PlaneMan
    Moderator
    @planeman
    Forumite Points: 1,719

    Thanks JCD, ordered some, Amazon Prime so if they don’t work for me, no problem.

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    #30213

    PlaneMan
    Moderator
    @planeman
    Forumite Points: 1,719

    The headphones arrived earlier and I’m impressed. Not tried them for long but they sound great.

    Thanks again JCD.

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    #30214

    JayCeeDee
    Participant
    @jayceedee
    Forumite Points: 1,066

    Welcome.👍👍😀😀

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    #30339

    PlaneMan
    Moderator
    @planeman
    Forumite Points: 1,719

    Just got back from the GP and the x-ray on my shoulder ‘shows no significant wear or damage’.  The GP was a surprised, to say the least.

    Anyway, he had a bit of time spare so arranged a steroid injection at the surgery almost immediately. I’ve had lots of injections around joints but that one was very bizarre, I could feel the needle ‘part’ the shoulder. It’s damn sore now but that should die down within 24 hours with luck.

    Waiting on physio now. 🙄

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    #30719

    PlaneMan
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    @planeman
    Forumite Points: 1,719

    Currently waiting outside the Rheumatology Day Unit at the Heath hospital for a check up on how I’m going with the methotrexate injections. 2pm appointment.

    Nightmare time for an appointment so I left early anticipating a long wait for a disabled parking space. Drove straight into one outside the main entrance. Also expecting a long wait for bloods. Again straight in.

    Sods law. …

     

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    #30820

    PlaneMan
    Moderator
    @planeman
    Forumite Points: 1,719

    This popped up in my news feed earlier ‘Antisocial bees share genetic profile with people with autism‘.

     

     

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    #30823

    Bob Williams
    Participant
    @bullstuff2
    Forumite Points: 2,593

    This popped up in my news feed earlier ‘Antisocial bees share genetic profile with people with autism‘.

    Thanks for that Nolan, just sent it to my Aspergers No. 1 Gson. Waiting for his buzz…

    Sorry! 😊😁

    “If you think this Universe is bad, you should see some of the others.”
    ― Philip K. Dick, legendary SF writer.

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    #31438

    PlaneMan
    Moderator
    @planeman
    Forumite Points: 1,719

    Had the left shoulder injected with steroids today, hard to tell if it’s actually worse or I can just feel it more now that the right is better after the steroid injection there.

    It’s odd it works in my shoulder but hasn’t the few times I’ve had it in my hip. 😕

    When I was showing the GP where the pain was he got a little freaked out at my dislocating wrist and how blasé I was apart form the wince when it went back into place. Another referral in the pipeline……………..

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