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Pancreatitis and a new diet.

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  • #60521
    Participant
    Bob Williams
    @bullstuff2

    My GP’s have been trying for almost a month, to get the hospital to recognise there is something really wrong with my internals. As the surgery is very well equipped, they have ended a number of tests and summarised the conclusion that I have suspected Chronic Pancreatitis. I have seen the letter, signed by the Practice Leader and added to by all 5 GP’s, which was sent to the consultant who discharged me after a day as suffering from ‘constipation’. The letter is quite something and i believe they all took part in order to share the fall-out.

    “There is a reason this patient has severe abdominal pain and has lost almost 10 Kilos in a month. He cannot eat and is sick when he does.” He has bouts of diarrhoea and is very weak and tired.” Another “I have known this patient for 20 years, since I first came to the surgery. He has suffered many severe medical episodes but I have never known him to cease fighting and have never known him as depressed and low as he is now.” Yet another “The fact that this patient endured pancreatic cancer, survived losing part of his pancreas, spleen, lymph glands and chemotherapy, should have alerted professionals to the red light that is (in our opinion) Pancreatitis, or at the least, pancreatic inflammation.”

    It goes on in that vein (no pun here) and ends with a veiled threat to take my case higher. I cannot express my gratitude and admiration for their support. They have set me upon a diet: no fat, red meat, cake, anything greasy. Fish, chicken, lean pork, Pasta, certain noodles, brown rice, plain yoghurt and other similar foods.

    So this evening I sat down to: boneless chicken thigh, egg noodles and peas. And thoroughly enjoyed it, but because I have not eaten properly for a while, I am now stuffed. I have actually been feeling better over the last few days, although still tired while managing 8+ hours sleep a night. Haven’t been sick for 3 nights and the fact that food is staying in place and being digested, means nourishment is reaching the parts again. Today I went to the Co Op as I know they have the best selection of the foods I need, and brought home enough for a week.

    Onward and upward! (Or maybe downward :yahoo: )

    When the Thought Police arrive at your door, think -
    I'm out.

Viewing 20 replies - 81 through 100 (of 122 total)
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  • #63465
    Participant
    Wheels-Of-Fire
    @grahamdearsley
    Forumite Points: 6,522

    I know what he means about the meds. Apparently morphine doesn’t mix well with the residual effects of a general anesthetic and tramadol. Had me seeing people and things that weren’t there, large as life.

    #63467
    Participant
    PlaneMan
    @planeman
    Forumite Points: 7,726

    Thanks for that Dave.

    Please wish him my best.

    WOF, I’ve had really bad reactions to certain medication over the years.

    I blacked out, bounced of a wall, tumbled down some concrete steps and aggressively fought the ambulance crew who came to take me for a checkup.

    So I’m told. No idea at all. Lost 48 hours due to one dose of ‘safe’ medication.

    I came around, restrained to a hospital bed with a copper either side of me. :negative:

    Not my best few days…

    #63469
    Participant
    JayCeeDee
    @jayceedee
    Forumite Points: 5,799

    Cheers, Dave – it’s good news that Bob is still with us, less than good that he’s still in hospital and suffering there!! As an elderly friend that I knew 20+ years ago used to say, ” Considering the alternative, I’m doing fine!!”

    Send him our thoughts and best wishes. 👍👍

    #63475
    Participant
    Ed P
    @edps
    Forumite Points: 17,429

    +1 to the thoughts and best wishes. :good:

    #63622
    Participant
    Dave Rice
    @ricedg
    Forumite Points: 9,804

    Bob seems back to himself as far as posting on FB goes, but I think he’s been through it a bit this time.

    #63626
    Participant
    PlaneMan
    @planeman
    Forumite Points: 7,726

    That’s great.

    Thanks again Dave.

    When possible please give him my best wishes.

    #63629
    Participant
    JayCeeDee
    @jayceedee
    Forumite Points: 5,799

    Cheers, Dave. Next time you talk, or whatever, wish him well and tell him he’s got a ‘Friend’ request from my Missus, I can’t do much until he accepts it.

    #63712
    Participant
    Ed P
    @edps
    Forumite Points: 17,429

    Dave, please pass on some Doggerland links for Bob.

    https://www.livescience.com/search?searchTerm=doggerland

    #63714
    Participant
    Dave Rice
    @ricedg
    Forumite Points: 9,804

    Done

    #64363
    Participant
    Dave Rice
    @ricedg
    Forumite Points: 9,804

    Latest from Bob last night via Messenger:

    “I will be home by December 18, not cured but having care services at home. Back again in March if I make it for one last procedure. Consultant says if they have a look then, I’m either clear or into a hospice. Brutal truth!”

    If there’s anyone strong enough to deal with the truth it’s Bob. I’m sure he’s going to get spoiled rotten this Christmas.

    #64366
    Participant
    Richard
    @sawboman
    Forumite Points: 6,549

    I look from time to time to see if Bob had made any progress. It is upsetting that he is still in at medical cross roads. Wishing him well is such a limited and feeble action but it all that I can do. Yes, he has admirable spirit, and it is great that he will be home for Christmas. It is certain that his family will rally round and put him at the centre of their thoughts and actions. Please tell him, that of course we are all rooting for him, and hoping against hope that the road to March will bring better news, perhaps even the best news.

    #64369
    Participant
    JayCeeDee
    @jayceedee
    Forumite Points: 5,799

    Our thoughts and prayers are with Bob for the best result, come March.🤞🤞 He’ll be home by my birthday, so I’ll be having an ( extra :good: ) tipple that night, on his behalf, wishing him well.

    Brutal truth is what you need, even though it may not be what you may want!! Full information, full facts. I well remember my diagnosis. Initially, at local level, the consultants tell you to stay off the internet, phrase things specifically, couch things in vague/arcane terms and terminology, staying away from the “C” word, so much so that when we transferred to the Marsden and the consultant in conversation said “Your cancer……….” the wife wanted to hit him!! After that, I told every consultant and registrar to give it to me straight, and bless them, they did.

    Bob’s first challenge will be mobility, extended hospital stays are the worst, especially in later life, where things stop working the way they used to as a norm!!!

    During my first hospital stay after the car crash, which was extended by a fortnight waiting for a special piece of equipment to insert a rod inside the bone between my knee and ankle, I was laying still, with one leg operated on and plated, while the other was in an open cast. The worst pain of almost the entire stay was after the op and recovery when, after 5 weeks of not moving under my own steam, I got physio to get my joints mobile again. That was pillow biting stuff!! Only exceeded when they thought that I’d been on morphine for too long and wanted to use a local in my leg. It had to be administered just above the bone and the only way they could precisely locate it was by the needle touching the bone, then coming back 1/4″. They pulled me off the ceiling for that one.

    Stay strong and stay safe Bob.👍👍

     

    I look from time to time to see if Bob had made any progress.

    Great to hear from you, Richard, hope all is well with you and your family. :good: We miss you and Bob – your missives would keep us smiling, which is what we all need these days. :-) :yahoo: It’s a quieter forumite without you both. :yes:

    #64372
    Participant
    Ed P
    @edps
    Forumite Points: 17,429

    +1 to all the thoughts for both Bob and Richard. :good:

    #64378
    Participant
    PlaneMan
    @planeman
    Forumite Points: 7,726

    Thanks yet again Dave.

     

    +1 to all the thoughts for both Bob and Richard. :good:

    What Ed said.

    #64380
    Participant
    The Duke
    @sgb101
    Forumite Points: 11,810

    I seen on FB the other day bob saying he would be out soon. I felt really bad as I’ve spoke to home once or twice but never realised he was in Ozzy.

    Too wrapped up in my own life. A real good guy bob is

    #64826
    Participant
    Richard
    @sawboman
    Forumite Points: 6,549

    Just a brief offer of season’s greetings to all, at this stressful time and a special wish that Bob’s Christmas will be the very best that it can be.

    Perhaps, if he can see or hear, it might be of comfort that people are thinking of him at what will be an especially challenging time.

     

    #64831
    Participant
    Ed P
    @edps
    Forumite Points: 17,429

    Best wishes to all for Christmas and the New Year. I hope that everyone finds them less challenging than this year!

    #64833
    Participant
    Wheels-Of-Fire
    @grahamdearsley
    Forumite Points: 6,522

    Oh no they won’t !

    I went for my 6 month routine blood test on monday and I just got a message from my Doctor (9.43 pm) saying my Potassium level is dangerously high at 6.1. He has booked me a retest at 7.30 am tomorrow in their emergency clinic but he says if I feel unwell then I should go to A&E immediately.

    Well I do feel unwell but sod that for a game of soldiers, I will go for the test but I am NOT spending ANOTHER Christmas in hospital.

    #64835
    Participant
    Dave Rice
    @ricedg
    Forumite Points: 9,804

    Stop eating the banana splits Bingo.

    #64837
    Participant
    Wheels-Of-Fire
    @grahamdearsley
    Forumite Points: 6,522

    Good one Dave. LaLaLa La LaLa La and so on :-)

Viewing 20 replies - 81 through 100 (of 122 total)
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